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Admin 153 posts
Posted 12 days ago
There is so much valuable experience in all of the replies thank you everyone, I feel that in a way we are the experts as we are the ones giving 24 hour care. I just wondered how is everyone doing and how are your children doing ?
Member 6 posts
Posted 4 months ago
Sorry you have had to find your way to this forum but I have found it to be a lifeline in the last few months since my Ds diagnosis. I will let you know what worked for us and hope that some of it can work for you.
My D was diagnosed with Anorexia Nervosa with depression and anxiety in November 2017 and was prescribed 25mg Sertraline which both us as parents and my D agrees have helped her deal with the feelings that she associated with her ED.
November we were told that our 15 year old D was not strong enough to be at school (such a blow to us as we had been to parents evening the night before and were told that she was on track for "A"s at end of year 11). My GP signed me off work for a few months which like Sunshine Days was a god send in the fact that I didn't have "time" pressure and could sit for as long as it took our D to eat a meal (sometimes upto 2.5hrs). In January our D was allowed back at school on a "phased" return which was assessed at our weekly Family Based Therapy (FBT) sessions and gradually over the weeks she was allowed back at school for all lessons and my H collecting her from school every day and giving her a lunch as per her meal plan. Last week it was agreed that she could try and have lunch at school which she tells us she has been doing but the scales will tell tomorrow at FBT.
Whilst re-feeding our D we made it clear to her (well rather ED) that we would not be moving from the table until she had finished her meal in front of her and her next meal would be at the same agreed time even if it was 1hr after she finished said meal (AND WE HAD TO STICK TO OUR WORD). We also found that distraction tactics that she could do at the table during mealtimes worked (eg colour by number, wordsearches and even her phone:)
We still have the "odd" flare up and have learnt to recognise the signs of ED and encourage her to talk to us instead of bottling whatever is bothering her.
Member 4 posts
Posted 5 months ago
Looking for some advice. Our daughter was diagnosed just before Christmas and we have been attending sessions twice weekly. It has been really difficult trying to refeed and get our heads round this illness and the stresses that it brings. She is just about in school and is desperate to do well in exams to get to University, which in itself is such a frightening thought. In therapy this week it was suggested that she start taking Prozac. She is only 17 and the whole idea of this has really knocked my husband and I for 6. We want what is best for her but this seems so drastic. Can anyone advise as to their experience of this and if medication is helpful?
My 15 year old daughter was diagnosed with Anorexia Nervosa with depression and anxiety in October 2016 and she was prescribed 25mg Sertraline by her Phsychiatrist and I feel that has helped her along this very difficult path.
Hope you get the help and support you need :)
Thanks for your advice. Much appreciated. She has now decided she doesn’t want to take medication and we are trying to support her with this, but her weight has now dropped below where we were when she was first diagnosed. We are being advised to take her out of school and refeed at home. Has anyone got any advice about how this has worked for them when working full time? Did you get a leave of absence or get signed off? Really feeling as though we’re one step forward then 2 steps back. We take a wee bit of time off and things improve but then when we’re back to school routine it all goes pear shaped.
Hi there, it seems that the care and treatment for eating disorders varies across the country. Some people do take Prozac and do well on it however this is not the case for everyone who takes Prozac. From my own experience it seems that each individual responds differently to anti depressant My own child did not do well on Prozac and it increased her thoughts of suicide, she then tried a number of different anti depressants before she found one that her system could tolerate. I think that there is a lot of guesswork that goes on with anti depressant drugs. Interestingly my own child has now been taken off of them altogether after 3/4 years and put on mood stabilising drugs instead, I wonder if that will work? I would read the packaging, read the side effects bearing in mind that she has important exams coming along. It is about what will work for her.
Thanks for your advice. Since being prescribed there has been a lot of media coverage about young folk taking anti depressants and this has scared her so she is avoiding taking them. We are supporting this as we were uneasy too, but not sure this is the right course of action. I suppose we can only take each day as it comes. We are now moving into thinking about taking time to refeed at home as suggested by CAHMS, as her weight is still dropping. Now looking for advice as to how this can be best managed. Thanks again
Member 35 posts
Hi, I hope that things are taking a more positive turn, it is as you say about taking one day at a time, I had days when it all seemed behind us, she would eat and be compliant and then other days when we were thrown back into the maelstrom of tense emotions. But when she had decided to restore the progress was slow and tortoise like but it was positive(all be it at a painstakingly slow pace).. Advice on re feeding at home; be clear, set timetables, what you are expecting her to eat and when, do not allow any changes as she may try to change the menu or take slightly smaller portions. Agree the timetable with her maybe the day before. Try to meet your timetable as she will begin to feel anxious as the mealtime nears so if it is delayed her anxiety will increase. Do your best to include all of the food groups. Accompany her after the meal, maybe play a game of cards watch a film something to try to distract her ED thoughts from causing her distress, as her anxiety will be high after she ahs eaten. Try to hide the scales even get rid of them if you can. Hope that helps
Member 5 posts
Our daughter was not allowed at school for 7 weeks due to being so underweight. During this time the GP signed me off work as our daughter had to have someone with her at all times and we had to take control of her eating. Not having to worry about work and just being able to focus on weight restoration was a real god send. When our daughter reached 86% weight for height she was allowed back to school for short periods until she was able to go back full time. However I did meet her at lunch times so I could supervise lunch initially. Hope this helps you in some way.